(17-02-07) Mayo Clinic

New day, new clinic, new doctor.  I’ve gotten used to this by now.  I can concisely sum up 15 months of trauma and treatment, whip off my clothing and show my private areas to groups of complete strangers in a room, and report devastating experiences without so much as a crack in my voice or a tear in my eye.  I can ask questions unapologetically and relentlessly, size up whether i like a doctor within a few minutes, and make it clear that i know in the end all these decisions are MINE – not theirs – to make.

Today was no exception.


me, 10 minutes into the consultation: Does the IGAP flap surgery take fat from the lower butt itself, or the thigh area just below the butt?

Dr. Casey: the lower butt itself … but honestly, i wouldn’t recommend that surgery for you.

me: Why not?  That’s the area where i have the most fatty tissue to work with.

Dr. Casey: There are a number of issues with doing that.  First, there’s your positioning in the operating room to consider.  We can’t suck fat out from your back side, then flip you over to perform surgery on your chest.  This means we’d essentially have to have you propped up on your side the whole time, which is tricky.  Then, there’s the fact that the tissue in your butt is far more fibrous than in your chest; it’s like trying to make a mold out of something that’s as solid as a rock.  There is also often a problem trying to match up the size of the blood vessels between those two regions, and since we have to connect the blood vessels, we need the sizes to be relatively similar.  Also, because we’d be cutting into the area where your sciatic nerve is located, you may find yourself dealing with chronic pain in the long run.

me: So, then, what type of reconstruction are you suggesting?

Dr. Casey: I think a lateral thigh perforator (LTP) flap surgery would be best.  It takes tissue from your outer thigh area.  The blood vessels are more similar in size to the ones by your chest, and it goes in between the muscles instead of cutting into the muscles.

me: I haven’t even heard of this option.  Do you have any before and after photos that you can show me?

Dr. Casey: No.

me: (blink, blink) Um, okay.  Do you not take photos before and after these procedures?

Dr. Casey: Yeah, we do, but there is patient confidentiality to consider.

me: I understand that.  So no one has given you permission to let other prospective patients see what this procedure looks like?

Dr. Casey: No.

me: Okay… Is there any one who’s had this procedure whom i could talk to, to get more insight?

Dr. Casey: No.  Again, patient confidentiality.

me: How many of these procedures have you done?

Dr. Casey: Three.

me: Three?!  How many of the IGAP surgeries have you done specifically for breast reconstruction?

Dr. Casey: One … and again, that’s not what i would recommend doing.

(My head is REELING.  This guy has only performed this procedure THREE TIMES, and he has NO PHOTOGRAPHIC EVIDENCE of his work?  Is he fucking KIDDING ME right now?!)

me: How long has this procedure been around?

Dr. Casey: It’s been around for about three years.  If you want to research it, look up Stefani Tuinder.  She works in the Netherlands and has some done some pioneering work in this field.

(Pioneering is not a comforting word when we’re talking about reconstructive surgery.  When i hear “pioneers,” i think of old-fashioned ladies wearing bonnets and living without electricity.  Poor word choice, Mr. I’ve-Done-This-Highly-Technical-Microsurgery-Three-Whole-Times.)

me: What is the risk of the flap failing and collapsing?

Dr. Casey: There is a 2-3% failure rate with LTP flaps.  There’s also a risk of blood clots forming from the blood vessels not working properly, which is why you’re in an intensive care recovery unit for a few days after the procedure.

me: Are there two surgeons available to do both breasts at the same time?

Dr. Casey: I wouldn’t recommend that.

me: But some surgeons are willing to do that.  Is that an option here?

Dr. Casey: No.

me: So you’re the only surgeon here who does this kind of surgery?

Dr. Casey: No, there are others, but we all have our own individual practices, and it would be difficult to try to coordinate schedules.

(What that tells me, doctor, is that you’re not willing to put in a little extra work to accommodate my needs … or you just want all the surgery profits for yourself.  Regardless, i’m seriously less than impressed with you at this point.)

me: If i go through with this, i want to be able to have both breasts worked on at the same time.  The recovery time in between surgeries is long, and i’m really going to need to get back to work at some point.  I would like to avoid delaying that as much as possible.

Dr. Casey: If that’s something you insist on, i would recommend Dr. Bob Allen.  He works out of South Carolina and New York.

(Is that supposed to be helpful?)

me: If we *did* do separate surgeries, it appears that i would need three surgeries: one for the right breast, one for the left, and one for evening them out after they’ve settled.  What does the timeline look like, including recovery times and waiting periods?

Dr. Casey: Well, after the 1st surgery, you’d need to wait 3-4 months, then wait another 3-4 months after the left side.

me: And the recovery time is 8 weeks.

Dr. Casey: More like 6.

(More like 8….)

me: So i would be out of work for 6-8 weeks, be able to go back to work for 1-2 months, be out of work again for another 6-8 weeks, and then have to leave work 1-2 months after that for the third surgery, which would take another 4-6 weeks recovery?  So, we’re talking 24-38 weeks … 6-10 months total just for reconstruction?

Dr. Casey: That sounds about right.

(sounds about ri… Seriously, i kind of want to punch you in the face right now.)

* * *

In the end, he did convince me to return the following morning for a CAT scan.  The CAT scan is going to analyze all the blood vessels in my stomach, side thigh, and butt to see which ones would be appropriate for transfer.  I don’t even see the point of this; if there isn’t enough fat in certain areas, what does it matter what the blood vessels look like??  But i’m going … because honestly, the more involved i get with this process, the more ANNOYED i get, so these steps are just taking me closer and closer to saying a firm “NO” to reconstruction.

Author: breastcancerat35

I was diagnosed with Stage 3C Invasive Breast Cancer in October/November, 2015. This blog is my way to process my experience and allow my loved ones to have ongoing updates about my journey.

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