I am still in the hospital. I have informed all doctors that i am leaving tomorrow at noon, and they all tell me the same thing: they will not sign off on the discharge, so i am leaving AMA (against medical advice). What this means is that my insurance company now has the right to refuse to pay for any of these procedures or treatment, and i will be fighting this battle later. But i have to go.
Dr. Arcovedo, who calls the shots in my case, still hasn’t cleared me to eat solid foods. First, it was because i needed to work my way up to clear liquids and then full liquids as my stomach was recovering from the ulcer operation … and i understand that, as frustrating as it has been for me. But yesterday, days after i have shown to tolerate all liquids, he refused to approve solid foods because i was hiccuping. I tried explaining it was a nervous hiccup, and he told me it was because my stomach wasn’t ready for solid foods. So, i seriously have not eaten food since last Tuesday at 1:30.
This hospital experience has been like many others back when i went through cancer treatment, and i am sure i will blog about this week in more detail at a later time. But for now, i just want all of you to know that i am returning to Mexico tomorrow to get half a week of more treatment before returning to AZ.
I have no insightful stories, no revelational moments to share, no positive progress updates. This hospital is terrible. Most hospitals are, but this i am disgusted by some of their practices here. I’ll get into more detail about my experience here in another blog post, when i have the energy. For now, though, I’m just passing along the facts.
They repaired the hole in my ulcer on Wednesday and still do not feel comfortable giving me any solid foods. Instead, they give me a bunch of liquids, most of which are not healthy for anyone, much less a cancer patient.
I developed C difficil, presumably as a result of all the antibiotics i have received in the last two months (both here and at Rubio). They have me wearing a diaper, and i sit in my own shit for portions of the day. So now, even though i came in here for an ulcer surgery, they won’t let me leave until they treat the C difficil. They went me to stay here up to two weeks. Not an option.
Dr. Barrera is out of the country. I seriously am NOT having good luck recently with getting follow-up information from doctors who perform surgery on me. Fuck, how i miss Dr. Matatov right about now.
Here is the plan outlined by Kristina, Dr. Barrera’s P.A.
There will be no food or drink today, either. This is non-negotiable. She said the hole in my stomach/small intestine was pretty big (even though the report said it was less than 1cm), and they covered that hole with an omental flap, which I understand to just be a clump of fatty tissue. They need to give that time to make sure that the flap keeps the hole closed. There was also a lot of cloudy, gooey liquid circulating around my intestines and abdomem, liquid that should have been clear and smooth.
Tomorrow at 9:00, they will remove this drain from my throat. This 40-centimeter hose has been taking mucus and fluid out of my stomach ever since the surgery.
IF, at 10:00am, i am not having additional pain in my stomach from the drain removal, i will be allowed to have water and clear soup broth.
IF, at noon, my stomach handled the soup broth adequately, i will be allowed to have non-clear liquids: jello, yogurt, applesauce, etc.
IF my stomach continues to go all day Saturday handling the non-clear liquids, they MIGHT allow me to have solid food for dinner. Kristina was quite reticent about agreeing to that part; she wants me to wait until Sunday before eating solid foods. So, i know she just said Saturday night to appease me, but I’m likely not going to get anything solid until Sunday.
(1) She’s bringing me three jars of that pain-relieving cream next weekend (one is for you, Michelle!). I already gave her the money, and she has an appointment with the guy who makes them this week.
(2) She told me where the organic grocery store is. I’ve been asking all the staff here for weeks about a health food store, and no one had any suggestions for me… even though Prana is only two miles from the clinic!
(3) This morning, she took my almond milk, unsweetened peanut butter, and rotting banana from my room and had the kitchen staff turn it into a bomb ass breakfast smoothie. After eating eggs and 12-grain toast for breakfast every day for the past six weeks, this is *seriously* hitting the spot.
I’m already feeling my mood shift upwards. Bye, Grumpy Tarah. I know you’ll be back, but I’m gonna enjoy our space while you’re gone.